Owen was a wonderfully sweet, happy little boy who was born a healthy child. As he grew, he reached typical milestones and loved being with his big brother and family. When Owen was 18 months old he began to lose skills. He had difficulty walking and standing, and began to lose muscle control. After many invasive tests, including an MRI, lumbar puncture, two muscle biopsies and blood work, Owen was diagnosed with Leigh’s Disease. Leigh’s Disease is a type of mitochondrial disease which affects energy. The lack of energy production can cause damage to the brain, muscles, heart and kidneys. Tragically, Leigh’s Disease has a poor prognosis. Owen was on medication which attempted to manage the disease, but he continued to rapidly regress.
There is currently no cure for any type of mitochondrial disease. Despite the difficult journey, Owen continued to smile and brighten the lives of all those who met him. He is missed more than any words could ever express.
With Love,
The Hollars
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